Kash Maughan

Many can conjure up an immediate smile when thinking back to the months leading up to the birth of a new baby and the possibilities of the dreams and experiences that they will have in this life.  For most, the arrival of their bundle of joy happens without incident and everything is just as it should be, the dreams for their child continue.  For others, their precious babies come to the world with immediate challenges and they are forced to see through the pain and conquer the unknown.

We would like to introduce a special little boy, Kash Maughan.  Kash was born with a rare disease called X-linked Myotubular Myopathy. He is unable to walk, talk or roll over and requires a ventilator to help him breath. But that does not stop him!  He also has a port in his stomach enabling him to receive his nutrients.  He cannot swallow food and his liver cannot break things down.  Despite all of these challenges, he is like most other 4 year olds; he loves to play, read, and watch movies and loves music! Unlike most other 4 year olds, this special little boy has had to develop bravery, patience and a fortitude that a lot of people don’t develop in a lifetime.  The people who know and love Kash describe the gratitude that they feel, like they have an actual angel in their midst.

 

Though this disease and its treatment have tested and tried Kash and his family, they are stronger because of the journey.  Debbie and Eric might say in reflection, “It is just as it should be” and they are indeed conquering the unknown.  This incredible boy just continues to amaze everyone around him.

Kash is in need of some vital medical equipment that will help him function and flourish on a day-to-day basis.  Please join us in doing Anything for a Friend!

 

 

 

About the Event:

Event Date:  February 25th, 2012

Event Time: 5-9pm

Location: 
                  Shepherd Union Ballroom
                  Weber State University
                  Ogden, UT 84408

Activities:  

  • Dinner/Bake Sale
  • Silent Auction
  • Live Auction
  • Kid's Corner
  • Balloon Launch

 

Organizing Committee Meeting:

The next organizing meeting for Kash's event will be held on Thursday February 2nd at 7pm, at the church house located at 1402 N. Fort Lane, Layton Ut., 84041 (Please contact Wendy DiGiacomo at 801-309-7547 with question and/or assignments.)




Comments

If you would like to give words of encouragement to Kash, please do so below!

Posted by beckyanderson on Dec 3rd, 2011
Kash, Debbie, and Eric!

Welcome to the Anything for a Friend family! We are so excited to join you in journey and know that we will come to love and appreciate all of you. May the Lord's peace be in your home and in your hearts.

Love,

Becky
Posted by Ann Smith on Dec 4th, 2011
Dear Kash, Debbie & Eric,
I am looking forward to being involved in another life and heart-changing event! Our family has been the recipient of so much love and support by our AFAF family, I cannot wait for you have the same experience! Our family looks forward to getting to you all better!
Love, Ann Smith (Tyler's mom)
Posted by Anderson Family on Dec 5th, 2011
Kash, Debbie, and Eric
Your lives have been forever changed, but expect that to change all over again. We welcome you to the AFAF Family and are so excited to have an other amazing event and more for more love to add to our AFAF Family. We have also been recipients and accepted with open arms to the AFAF Family. May you feel the warmth and love from all in your incredible journey.
Posted by Sue Gray on Dec 11th, 2011
Kash, Debbie & Eric,

I was so glad to meet you at Brandon's event!! I loved your little boy upon meeting him as he waved me on to bend down and touch him. What a precious soul!!! I know you are mighty special people to have been asked to welcome him into your life!!! I look forwad to helping with your families event!! AFAF is something near to my heart!!! May God bless you all!!!
Love, Sue Gray
Posted by Wen dy DiGiacomo on Dec 17th, 2011
Eric, Debbie and Kash, I am hoping that I can do an excellent job for you guys at the fundraiser. You have all become such a special part of my heart. Just watching you guys together as a family is so amazing. Kash is truly loved and blessed by two amazing parents, and you two are blessed to have such an angel among you. Please know that I am here for you forever. Love Wendy
Posted by Bob Eggett on Dec 30th, 2011
Eric, Debbie, and Kash, it is great to have you a part of this wonderful family in AFAF. This truly is a remarkable organization! I am a past recipient and AFAF has helped me. I know that it can help you!! My family and I welcome you to the AFAF family. May Heavenly Father continue to watch over you and bless you! Our prayers are with you!
Love Bob Eggett and Family
Posted by Brenda Smith on Jan 1st, 2012
Eric, Debbie, Kash,

I am excited to meet your family and help with your event. Welcome to the AFAF family. I can tell that you are a special little soul and can't wait to meet you. Stay strong and remember that lots of people love you and are praying for you.
Love, Brenda Smith & Family
Posted by Midland Preschool Teachers on Jan 2nd, 2012
Hey Kash!
We all miss you at our school-we hope you are doing well and miss seeing your smiling face each day! Our love and prayers are with you bud.
Your preschool friends and Teachers
Posted by Margaret Summerhays on Jan 12th, 2012
Hey Awesome Kash!
My name is Margaret Summerhays, Jon Turner's sister...So good to meet you! Jon and Eric were best friends back in their school years, so I know him as well. From all of the wonderful things my brother has told me about you and your awesome personality, I think YOU ARE AMAZING!
I hope you have a great day
Love, your new friend,
Margaret Summerhays
Posted by the BallooneyBin on Jan 24th, 2012
Looking forward to your event Kash! We even have a little surprise for for you beyond the balloon decor and launch :)
Posted by Christine Oram on Feb 3rd, 2012
Kash, Debbie, and Eric,

Everyone is doing such a wonderful job putting this fundraiser together, I'm happy to be a part of it. You are blessed to have so many people who love and care for you and only wish you the best. What a great feeling to be involved with such a generous group of people.

Kash,

You are such a lucky little guy to have such great parent who love you.

Prayers and Love

Christine Oram
Posted by Maria Odle on Feb 3rd, 2012
Deb, Eric and Kash,
This has been a wonderful experience to go through this "Anything For A Friend" event with you. Little Kash- you are worth it all. I am so excited for the event! I can't wait to see how much it helps you. I hope you are feeling well. Debbie and Eric you are some of my dearest friends, I only hope that this event will help give you the blessings in your life that you need. I love you both! I am so thankful that Becky Anderson; Anything For A Friend have come back into our lives. What an example and blessing is has been to know Becky.
Maria
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