Many can conjure up an immediate smile when thinking back to the months leading up to the birth of a new baby and the possibilities of the dreams and experiences that they will have in this life. For most, the arrival of their bundle of joy happens without incident and everything is just as it should be, the dreams for their child continue. For others, their precious babies come to the world with immediate challenges and they are forced to see through the pain and conquer
the unknown. We would like to introduce a special little boy, Kash Maughan.
Kash was born with a rare disease called X-linked Myotubular Myopathy. He is unable to walk, talk or roll over and requires a ventilator to help him breath. But that does not stop him! He also has a port in his stomach enabling him to receive his nutrients. He cannot swallow food and his liver cannot break things down. Despite all of these challenges, he is like most other 4 year olds; he loves to play, read, and watch movies and loves music! Unlike most other 4 year olds, this special little boy has had to develop bravery, patience and a fortitude that a lot of people don’t develop in a lifetime. The people who know and love Kash describe the gratitude that they feel, like they have an actual angel in their midst.
Though this disease and its treatment have tested and tried Kash and his family, they are stronger because of the journey. Debbie and Eric might say in reflection, “It is just as it should be” and they are indeed conquering the unknown. This incredible boy just continues to amaze everyone around him.
Kash is in need of some vital medical equipment that will help him function and flourish on a day-to-day basis. Please join us in doing Anything for a Friend!
Event Date: February 25th, 2012
Event Time: 5-9pmLocation: Shepherd Union Ballroom Weber State University Ogden, UT 84408
the BallooneyBin, Chris and Neisha Winter, Balloons for the event
getcustomwristbands.com: , Morgan Pierce, 300 wristbands for the event
First National Bank, $500 Cash and help at the cash tables
State Farm Insurance, Dan Egbert, I-Pad and Spinning wheel for the Kid's Corner
One Fine Day, Kristin Larsen, Table cloths and decorations for the event
Instafire, Konel Baner, (5) $60 instafire 5 gallon buckets
Samantha Kaye Photography, (3) $175 Photo Sessions
Escrow Specialists, $500
Peaceful Pups 101, 1 dog training consult and lifetime follow-up $350 value
Bookscouter.com, $600 worth of children's books and cook books
Stampin' Up, $300 in product
Cyprus Credit Union, $300
Jazz Dancer Studio, Signed basketball and jersey
Matco Tools, tools
Apothecary Pointe Pharmacy, Over the Counter medications
Detail My Ride, (2) $150.00 Gift Certificates for Car Detail Service
Nik Kay Photography
Impact Guns Indoor Range, VIP passes
Caring for Little Hands
Auto Sound and Security
Amy and PJ Harrigan